Treatment for neurofibromatosis depends on the type of NF, the location and size of tumors, symptoms, and the patient's overall health. Many patients require long-term monitoring and individualized care.
Active Surveillance
Some tumors grow slowly and may not require immediate treatment. Regular imaging and clinical evaluations allow doctors to monitor for changes over time.
Surgery
Surgery may be recommended to:
- Remove symptomatic tumors
- Relieve pressure on nerves or surrounding structures
- Improve function or quality of life
- Address tumors that may have become cancerous
Radiation Therapy
Radiation therapy may be used in select cases to control tumor growth when surgery is not possible or when tumors recur.
Targeted Therapy
Certain targeted therapies have shown promise for specific neurofibromatosis-related tumors. These treatments are designed to block molecular pathways that drive tumor growth while minimizing damage to healthy tissues.
Pain Management
For patients with schwannomatosis or painful tumors, treatment may include:
- Medications
- Nerve blocks
- Physical therapy
- Specialized pain management programs
Rehabilitation Services
Supportive care may include:
- Physical therapy
- Occupational therapy
- Speech and language therapy
- Hearing rehabilitation services
Genetic Counseling
Genetic counseling helps patients and families understand inheritance patterns, genetic testing options, and family planning considerations.
Clinical Trials
Clinical trials may provide access to promising new therapies and treatment approaches. Researchers continue to investigate innovative treatments for neurofibromatosis and related tumors.
Follow-Up Care
Regular follow-up is essential to monitor tumor growth, identify new symptoms, and manage long-term complications. Ongoing surveillance allows the care team to adjust treatment plans as needed and support patients throughout every stage of care.
At the GW Cancer Center, neurofibromatosis care is delivered through a multidisciplinary team committed to providing personalized treatment, advanced therapies, and access to the latest research and clinical trials.
