Caring for the Caregivers

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Cancer doesn’t just change life for the person in treatment. It reshapes routines, roles, finances, relationships, and the emotional weather of a whole household. In the middle of all of it, caregivers show up — again and again — to drive to appointments, manage meds, track symptoms, advocate in exam rooms, translate medical language, keep meals on the table, and hold the hard moments that don’t fit neatly into a calendar invite.

Caregiving can be deeply meaningful. It can also be relentless. And when the needs keep coming, it’s easy for caregivers to slowly disappear inside the work of helping someone else survive.

As GW Cancer Center oncology social worker Sara Richman, LICSW, OSW-C, puts it: “Nobody chooses a cancer diagnosis. And when that diagnosis is made, it impacts the patient and those around them. Spouses, partners, children, friends — everyone is touched. Suddenly, life shifts and there is no option but to shift along with it. It’s hard work.”

When Life Feels Like It’s Unraveling

Jessica Gelfarb, LICSW, OSW-C, describes how the social work team supports families: “We help patients and their families with issues like financial concerns or housing or food insecurity… [and] provide mental health and emotional support.”

What that means in practice is this: when life feels like it’s unraveling, someone steps in to help steady it.

A cancer diagnosis rarely disrupts just one thing. Medical bills begin to arrive. Work schedules shift, or stop altogether. Groceries cost more. Childcare has to be rearranged. Transportation to appointments becomes complicated. The paperwork feels endless. The questions multiply faster than the answers.

a photo pf a man sitting on the floor in a dark room

Caregivers often carry these worries quietly. They are tracking insurance claims late at night. Calculating whether unpaid leave is possible. Wondering how to stretch a paycheck that suddenly feels smaller. Trying to stay calm in front of the person they love.

The GW Cancer Center social workers step directly into that space.

They help untangle insurance confusion. They identify financial assistance programs. They connect families to housing resources, transportation support, and food assistance. They help complete forms that feel overwhelming. They make calls that caregivers don’t have the time or emotional bandwidth to make.

And just as importantly, they listen.

They create a space where caregivers don’t have to be the strong one. Where they can say, “I’m exhausted,” or “I’m scared,” without worrying about burdening the patient.

This work is not an add-on to cancer care. It is cancer care. Because when caregivers feel supported — emotionally and practically — they are better able to support the person in treatment. When their own needs are acknowledged, they can focus on presence instead of panic.


Restoring a Sense of Control

Cancer often brings a profound sense of loss, of predictability, stability, and control.

As Joslyn Trovati, MSW, LICSW, OSW-C, explains: “So much of cancer is about loss… I want to give them even a small piece of that control back.”

For caregivers, that might mean creating a realistic plan. Breaking a large problem into manageable steps. Identifying what is within their control, and what isn’t. Sometimes, it’s simply knowing who to call next. Even small moments of clarity can reduce overwhelming stress.

Recognizing Caregiver Burnout

Burnout isn’t a personal failure. It’s what happens when stress outpaces support for too long.

Common signs include:

  • Persistent fatigue
  • Irritability or resentment
  • Difficulty sleeping
  • Withdrawing from others
  • Feeling emotionally numb or overwhelmed
  • Trouble concentrating

If you notice signs of burnout, treat it like an early warning light on your personal engine. Stop for a metaphorical oil check and fill your tires. Burnout is not something to push through.

If you’re feeling in crisis, or you’re worried about a loved one, you can call/text/chat 988 for immediate, free support. 

Self-Care Tips for Family and Friend Caregivers

These are practical, real-life supports, meant for people who are juggling work, kids, appointments, and worry.

  • Build a “care team,” not a solo mission
    • Create a shared list: rides, meals, pharmacy runs, school pickup, laundry, pet care.
    • Use a group text or simple shared doc so help is coordinated, not chaotic.

Try this ask: “Can you take Tuesdays, either dinner or a ride, through the end of the month?”

  • Schedule your own care like an appointment
    • The National Cancer Institute recommends putting self-care on the calendar, even one hour, because your loved one needs you healthy, too.

Small counts: a walk, a nap, coffee with a friend, a quiet drive, ten minutes with your phone off.

  • Protect sleep with “minimum viable” routines
    • Pick one wind-down cue (shower, tea, 10-minute stretch, audiobook).
    • If nights are disrupted, aim for a daytime reset: 20–30 minutes of rest when possible.
       
  • Use “good enough” nutrition and movement
    • Keep “default” snacks handy (yogurt, nuts, fruit, protein bar).
    • Take 5–10 minutes of movement when you can — a walk, a mini yoga session, stretching — especially after difficult calls or appointments.
       
  • Make space for your feelings without dumping them on the patient
    • Write it down. Voice-note it. Talk to someone outside the immediate circle.
    • Support groups and counseling can be a pressure-release valve (see local resources below).
       
  • Watch for the “caregiver trap”: doing everything yourself because it’s faster
    • When you can, let the patient (and other helpers) do what they can do, even if it’s slower or imperfect. Preserving independence helps both of you.
Self-care for Professional Caregivers

Professional caregivers, including nurses, aides, home health staff, social workers, patient-facing teams carry a different kind of load. They experience repeated exposure to distress, grief, urgency, and high expectations. Burnout often shows up as compassion fatigue, cynicism, feeling emotionally “flat,” dread before shifts, or reduced empathy.

Photo of a tired hospital worker

Protect your energy with these anchors

  • Micro-boundaries between patients: take one deep breath, a sip of water, relax your shoulders before entering the next room.
  • Debrief on purpose: regular peer check-ins or supervision (don’t wait until you’re fried).
  • Name what’s yours (and what isn’t): you can’t control outcomes; you can control presence, skill, and follow-through.
  • Use your off-time like recovery time: guard sleep, take breaks, and actually take PTO when possible (remember, you’ve earned that PTO).
  • Get support early: EAP, counseling, professional support groups, or reflective practice.

This is also where team culture matters: reasonable caseloads, protected breaks, rotating high-intensity assignments when possible, and leadership that treats burnout as a systems issue, not an individual weakness.

A Note from the GW Cancer Center Social Workers

Caregivers often feel like they have to be the organizer, advocate, and emotional anchor for patients and children, while also managing daily life. The GW Cancer Center social workers work with patients and families on the practical and emotional strain that comes with a diagnosis.

Jessica Gelfarb, LICSW, OSW-C, describes how her team supports patients and caregivers: “We help patients and their families with issues like financial concerns or housing or food insecurity… [and] provide mental health and emotional support.” 

If you’re not sure what kind of help to ask for, start with one conversation with a social worker. Often, that single connection opens doors to resources, support groups, and a plan.

Caregiver Support Resources in the DC Region
  • GW Cancer Center Support Groups (virtual; open to DC Metro Area)
    Free monthly groups and programs, many of which are open to caregivers. 
    (You can list this as your primary “start here” option.)
     
  • Smith Center for Healing and the Arts (DC)
    Offers caregiver programming and support groups, including a dedicated caregiver support group.
     
  • Hope Connections for Cancer Support (Bethesda & Landover; also virtual/hybrid)
    Free, professionally led programs for people with cancer and their loved ones, including support groups and stress-relief programming. 
     
  • Cancer Support Community Washington, D.C. (DC)
    Provides free support, education, healthy lifestyle classes, counseling, and navigation for patients, caregivers, and loved ones.
     
  • DC Caregivers’ Institute (DC)
    A DACL-funded program offering case management, respite, support groups, and more for unpaid caregivers.

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